Coalition of Skin Diseases

The Coalition of Skin Diseases (CSD) consists of several organizations that represent patients suffering from some of the 3,000 known types of skin disease. The groups share a common mission of educating patients, advocacy and supporting skin disease research that will lead to new treatments and cures. CSD members have engaged in collaborative advocacy efforts, including Skin Disease Research Day and NIAMS Coalition Day.  To visit the CSD online, click here.

Judy Jones, CSD President


Member Organizations

Basal Cell Carcinoma Nevus Syndrome/Gorlin Syndrome
BCCNS Life Support Network
PO Box 321
Burton, OH 44021
Tel: 440-834-0011

Fax: 440-635-0267
Send an email
Visit the website

Cicatricial Alopecia Research Foundation (CARF)
PO Box 64158
Los Angeles, CA 90064
Tel: 310-475-2419
Fax: 310-475-4883
Send an email
Visit the website

Cutaneous Lymphoma Foundation
PO Box 374
Birmingham, MI 48102
Tel: 248-644-9014
Fax: 248-644-9014
Send an email
Visit the website

Dystrophic Epidermolysis Bullosa Research Association (DebRA America, Inc.)
16 East 41st Street
3rd Floor
New York, NY 10017
Tel: 212- 868-1573 or (866) DEBRA76 (866-332-7276)
Send an email

Visit the website

Foundation for Ichthyosis and Related Skin Types (F.I.R.S.T.)
1364 Welsh Road, G2
North Wales, PA 19454
Tel: 215-619-0670
Fax: 215-619-0780
Send an email
Visit the website

Inflammatory Skin Disease Institute

P.O. Box 1074
Newport News VA 23601

Toll Free: 800-484-6800, ext. 6321

P: 757-223-0795

F: 757- 595-1842
Send an email 

International Hyperhidrosis Society

Suite 6121-A

Kellers Church Road

Pipersville, PA 18947

Send an email 

Visit the website

International Pemphigus & Pemphigoid Foundation (IPPF)
1540 River Park Drive, Suite 208
Sacramento, CA 95818
Tel: 916-922-1298
Fax: 510-527-8497
Send an email
Visit the website

National Alopecia Areata Foundation (NAAF)
14 Mitchell Blvd.
San Rafael, CA 94903-1953
Tel: 415-472-3780
Fax: 415-472-5343
Send an email

Visit the website